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Maxine's Story

As a new sufferer of this syndrome I am looking to find as much info as possible on this.
I have recently moved house and of course G.P and have found that the doctors know very little on the subject. I have felt my life deteriorating steadily over the past nine months. It is really scarry to suddenly feel one hundred years older than what you really are, well thats how I feel.
Because I don't look unwell it is hard to get others to understand how bad I feel. I would like to know how bad Bechets can get, I'm hoping not to bad. Also what aillments or illnesses come with it.

I hope someone out there will be able to help me.