We are very interested to hear your stories and experiences
on issues concerning Behcet's Disease. Learning from other peoples
knowledge is very important as this disease as much publicity as possible.
As well as learning the technical aspects of Behcet's Syndrome,
we also need to learn the social, physical and psychological affects
of the disease. We know from personal experience that a source of
information is required which tackles these issues, as most of the
sites on the internet are based purely on just the professional
Most of the stories sent in have all the ingredients which we
are looking for. They not only highlight the bad points but also
show there are good times as well. As with any serious illness care
has to be taken to show a balanced viewpoint, otherwise it can become
Most (but not all) of the people we come across with Behcet's
have had some rotten times, this is balanced (or compensated) by
the good experiences they have. One of them being the amount of
support they have for fellow sufferers.
Below are some experiences of people who have ( or live with someone
who has) Behcet's Disease. If you want to share your experiences
on these pages, then just send them to us. They can be amusing,
sad, long , short, funny, angry or just informative. It is only
by sharing your experiences with others that we can truly understand.